Mission
To improve the lives of people with cystic fibrosis, and to raise awareness and spread knowledge about the treatment and management of cystic fibrosis in Kosovo.
About us
An association built by parents.
All members of the association are parents of children with cystic fibrosis.
Our story
Standing with families affected by CF since 2015
The Association for Persons Affected by Cystic Fibrosis is a non-governmental organization founded in 2015 with the aim of representing people with cystic fibrosis in Kosovo. The association works to secure the rights of people with cystic fibrosis in Kosovo, to seek access to medicines for every person, and to help them live as stable a life as possible.
All members of the association are parents of children with cystic fibrosis.
Vision
That every patient born with cystic fibrosis and living in Kosovo has quality care and access to the medicines and equipment that extend their life expectancy and improve their quality of life.
How we work
Awareness and fundraising
To fulfil its mission and goals, our organization holds a variety of activities to raise public awareness and to raise funds, mainly through:
Contribute too- Grants from donors
- Partners
- Sports events: running races, basketball and football matches, charity matches
- Cultural events, including charity concerts and festivals
- Association membership fees
- Online donors (social media, websites, etc.)
- Sales of various products (e.g. auctions)
- Medical and scientific events
Board
The people behind the association
Be someone's breath.
A donation, however small, gives a child with cystic fibrosis one more day of uninterrupted treatment.