Association for Persons with Cystic Fibrosis · Kosovo
Cystic fibrosis can be treated, but not cured. In Kosovo, families pay more than €1,000 a month out of their own pockets for the medicines that keep their children alive. Together, we can change that.
Who we are
The Association for Persons Affected by Cystic Fibrosis is a non-governmental organization founded in 2015 with the aim of representing people with cystic fibrosis in Kosovo.
To improve the lives of people with cystic fibrosis, and to raise awareness and spread knowledge about the treatment and management of cystic fibrosis in Kosovo.
That every patient born with cystic fibrosis and living in Kosovo has quality care and access to the medicines and equipment that extend their life expectancy and improve their quality of life.
If a child is doing well, it is because of the treatment and care they receive. Physiotherapy and enzymes must never be interrupted.
— Association for Persons with Cystic Fibrosis in Kosovo
Your impact
Daily therapy cannot be skipped. Every contribution helps a family continue treatment without interruption.
Without pancreatic enzymes, food cannot be digested. Children with CF take them with every meal, every day.
Clearing thick mucus from the lungs is done 1–4 times a day, for life.
Lung infections need prompt treatment, and fat-soluble vitamins are essential.
Campaigns, educational materials and activities that make CF known to families, doctors and society.
Educational resources
News
May is Cystic Fibrosis Awareness Month. What CF is, why daily treatment can never be skipped, and why its cost is so hard for families in Kosovo to bear.
Read moreThe Final 8 – Osa Termosistem Kosovo Basketball Cup starts today, with a cystic fibrosis awareness campaign run with the Basketball Federation of Kosovo and KB Rahoveci.
Read moreGallery
Our partners
A donation, however small, gives a child with cystic fibrosis one more day of uninterrupted treatment.
